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      -------- Forwarded Message --------
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            <th valign="BASELINE" nowrap="nowrap" align="RIGHT">Subject:
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            <td>Data Governance Principles centered on equity and UHC</td>
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            <th valign="BASELINE" nowrap="nowrap" align="RIGHT">Date: </th>
            <td>Mon, 28 Mar 2022 21:39:09 +0530</td>
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            <th valign="BASELINE" nowrap="nowrap" align="RIGHT">From: </th>
            <td>parminder <a class="moz-txt-link-rfc2396E" href="mailto:parminder@itforchange.net"><parminder@itforchange.net></a></td>
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            <th valign="BASELINE" nowrap="nowrap" align="RIGHT">To: </th>
            <td>정준호 <a class="moz-txt-link-rfc2396E" href="mailto:parasite@snu.ac.kr"><parasite@snu.ac.kr></a>, Susana Barria
              <a class="moz-txt-link-rfc2396E" href="mailto:sbarria@phmovement.org"><sbarria@phmovement.org></a>, Matheus Falcão
              <a class="moz-txt-link-rfc2396E" href="mailto:matheus.falcao@usp.br"><matheus.falcao@usp.br></a>, Marcelo Fornazin
              <a class="moz-txt-link-rfc2396E" href="mailto:fornazin@gmail.com"><fornazin@gmail.com></a>, Raquel Rachid
              <a class="moz-txt-link-rfc2396E" href="mailto:raquel.rachid@hotmail.com"><raquel.rachid@hotmail.com></a>, Elias Kondilis
              <a class="moz-txt-link-rfc2396E" href="mailto:elias.kondilis@gmail.com"><elias.kondilis@gmail.com></a>, Al Dahdah Marine
              <a class="moz-txt-link-rfc2396E" href="mailto:marine.aldahdah@ehess.fr"><marine.aldahdah@ehess.fr></a>, Peter Benjamin
              <a class="moz-txt-link-rfc2396E" href="mailto:peter@healthenabled.org"><peter@healthenabled.org></a>, <a class="moz-txt-link-abbreviated" href="mailto:cheehan@twnetwork.org">cheehan@twnetwork.org</a>,
              Ridwan Oloyede <a class="moz-txt-link-rfc2396E" href="mailto:ro@techhiveadvisory.org.ng"><ro@techhiveadvisory.org.ng></a>, gaulsan
              <a class="moz-txt-link-rfc2396E" href="mailto:gaulsan@gmail.com"><gaulsan@gmail.com></a>, <a class="moz-txt-link-abbreviated" href="mailto:unoccupy@gmail.com">unoccupy@gmail.com</a>,
              Sundararaman T <a class="moz-txt-link-rfc2396E" href="mailto:sundar@phmovement.org"><sundar@phmovement.org></a>, Sulakshana
              Nandi <a class="moz-txt-link-rfc2396E" href="mailto:sulakshana@phmovement.org"><sulakshana@phmovement.org></a>, Deepika Joshi
              <a class="moz-txt-link-rfc2396E" href="mailto:deepika@phmovement.org"><deepika@phmovement.org></a>, Sanya Reid Smith
              <a class="moz-txt-link-rfc2396E" href="mailto:sanya@twnetwork.org"><sanya@twnetwork.org></a>, Gargeya Telakapalli
              <a class="moz-txt-link-rfc2396E" href="mailto:gargeya.t@phmovement.org"><gargeya.t@phmovement.org></a>, Abbas
              <a class="moz-txt-link-rfc2396E" href="mailto:abbas@itforchange.net"><abbas@itforchange.net></a>, <a class="moz-txt-link-abbreviated" href="mailto:anita@itforchange.net">anita@itforchange.net</a>
              <a class="moz-txt-link-rfc2396E" href="mailto:anita@itforchange.net"><anita@itforchange.net></a>, Deepti Bharthur
              <a class="moz-txt-link-rfc2396E" href="mailto:deepti@itforchange.net"><deepti@itforchange.net></a>,
              <a class="moz-txt-link-abbreviated" href="mailto:digital-health-wg@justnetcoalition.org">digital-health-wg@justnetcoalition.org</a>, 이상윤
              <a class="moz-txt-link-rfc2396E" href="mailto:leesangyun68@gmail.com"><leesangyun68@gmail.com></a></td>
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      <p>A group called TransformHealth has developed a set of Health
        Data Governance Principles that are centred on health equity and
        Universal Health Coverage. </p>
      <p>I think this is the first set of health data principle that
        principally focuses not just on technical issues, nor only on
        privacy, but is mainly oriented to the socio-political objective
        of health equity. The by line of the principles doc is -
        'Universalising the benefits of health digitalisation'. While
        not perfect, this document invokes path-breaking concepts of
        collective rights over health data, and the right to share the
        benefits arising from one's health data (for individuals, as
        well as groups and communities). <br>
      </p>
      <p>The still embargoed text is at
        <a class="moz-txt-link-freetext"
href="https://transformhealthcoalition.org/wp-content/uploads/2022/03/Health-Data-Governance-Principles-Embargoed-Copy.pdf"
          moz-do-not-send="true">https://transformhealthcoalition.org/wp-content/uploads/2022/03/Health-Data-Governance-Principles-Embargoed-Copy.pdf</a></p>
      <p>Early endorsements are open till the 4th of April. The document
        will be released in public on the 7th of April.</p>
      <p>This is to submit the document for your comments, and in case
        PHM wants to endorse it..</p>
      <p>(Disclosure: IT for Change had the co-chairship of the group
        that drafted these principles. If we may say so, many of the
        important concepts like collective rights, and right to share
        benefits arising from, have been developed and contribute by us
        to this document. We may have in general played an important
        part to so centrally, and substantively, focus this document on
        health equity.)</p>
      <p><b>As mentioned, this document is for restricted circulation
          till the 4th.Circulation is only for the purpose for obtaining
          initial pre-public release endorsements. <br>
        </b></p>
      <p>Meanwhile, whether or not people/ groups are willing to endorse
        it, it may be worth a discussion, and as an input to this
        group's work..</p>
      <p>parminder <br>
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