[Digital-health-wg] Fwd: 📣 Launch of Public Consultation: Input on the Health Data Governance Principles!

[parminder]

Dear All

These are draft health principles from Transform Health, a relatively
liberal and mainstream group. We however participated in this process
and think were able to guide them towards a strong equity focus. parminder


-------- Forwarded Message --------
Subject: 	📣 Launch of Public Consultation: Input on the Health Data
Governance Principles!
Date: 	Wed, 27 Oct 2021 15:10:15 +0100
From: 	Kirsten Mathieson <kirsten.mathieson at transformhealthcoalition.org>
To: 	Kirsten Mathieson <kirsten.mathieson at transformhealthcoalition.org>



Dear partners,

Transform Health is launching a public consultation on a set of Health
Data Governance Principles.
<https://transformhealthcoalition.org/wp-content/uploads/2021/10/HDG-Principles-Public-Consultation-Draft.pdf>The
consultation will be open from 27 October until 3 December. Visit our
Public Consultation page <http://bit.ly/HDGInput>for more information
and to share your feedback through the online survey.

 

 

Together with partners, Transform Health has been stewarding a
consultative process
<https://transformhealthcoalition.org/blogs/th-news/building-hdg-principles-workshops/>to
develop a set of representative and human rights-based Health Data
Governance Principles. Thank you to the many partners that have
contributed to the current draft! Grounded in UHC, the Principles bring
a human rights and equity lens to digital health, and are oriented
toward supporting sustainable and resilient public health systems. They
seek to align stakeholders around core tenets of data governance, to
guide behaviours, actions and policies, creating an environment where
all people and communities can share, use, and benefit from health data. 


We are now inviting feedback through an open public consultation, which
will allow the Principles to be further refined, supported, and endorsed
by an even wider audience. We encourage partners to share information
about the consultation with their networks and to carry out their own
regional, national or local consultations to gather further insights
from diverse stakeholder groups. Please share your feedback through the
online survey <https://iirfvzos27c.typeform.com/HDGP-Survey>on the
Public Consultation page, <http://bit.ly/HDGInput>which also includes
further information and resources to support local consultations.

 

AMPLIFY THE CONSULTATION:

 

Please find a social media toolkit
<https://docs.google.com/document/d/1T0WiE_qYI-iHQXxcMD2Hh8vZQT5XRzJbFCZ1ISAkulE/edit?usp=sharing>to
amplify this public consultation to ensure we get as diverse a set of
inputs as possible! The toolkit also contains a poster
<https://drive.google.com/file/d/1S61N-p-ZMbHSGj633LZ_qAHeFY-1n-ZB/view?usp=sharing>for
you to share to amplify your organisation’s participation in this
consultative process, to which you can add your logo and share. You can
also click this link <https://ctt.ac/p3DMr>to directly tweet about the
consultation. 

We look forward to your feedback and support.

Best wishes,
Kirsten

-- 


twitter <https://twitter.com/Trans4m_Health> 	
	linkedin <https://www.linkedin.com/company/transform-health-coalition> 	

	
	


      *Kirsten Mathieson *(she/her)**

      Policy Lead, Transform Health



	+44 (0) 7413863136

	kirsten.mathieson at transformhealthcoalition.org
<mailto:kirsten.mathieson at transformhealthcoalition.org>

	transformhealthcoalition.org <http://transformhealthcoalition.org/>

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