[Digital-health-wg] 📣 Launch of Public Consultation: Input on the Health Data Governance Principles!
Sundararaman T
sundar at phmovement.org
Fri Oct 29 04:56:35 UTC 2021
Dear Parminder,
Browsed through it .Seems interesting. Will give them a feedback..
Sundar
> On 27-Oct-2021, at 7:47 PM, parminder <parminder at itforchange.net> wrote:
>
>
> Dear All
>
> These are draft health principles from Transform Health, a relatively liberal and mainstream group. We however participated in this process and think were able to guide them towards a strong equity focus. parminder
>
>
> -------- Forwarded Message --------
> Subject: 📣 Launch of Public Consultation: Input on the Health Data Governance Principles!
> Date: Wed, 27 Oct 2021 15:10:15 +0100
> From: Kirsten Mathieson <kirsten.mathieson at transformhealthcoalition.org> <mailto:kirsten.mathieson at transformhealthcoalition.org>
> To: Kirsten Mathieson <kirsten.mathieson at transformhealthcoalition.org> <mailto:kirsten.mathieson at transformhealthcoalition.org>
>
> Dear partners,
>
> Transform Health is launching a public consultation on a set of Health Data Governance Principles. <https://transformhealthcoalition.org/wp-content/uploads/2021/10/HDG-Principles-Public-Consultation-Draft.pdf> The consultation will be open from 27 October until 3 December. Visit our Public Consultation page <http://bit.ly/HDGInput> for more information and to share your feedback through the online survey.
>
>
>
> Together with partners, Transform Health has been stewarding a consultative process <https://transformhealthcoalition.org/blogs/th-news/building-hdg-principles-workshops/> to develop a set of representative and human rights-based Health Data Governance Principles. Thank you to the many partners that have contributed to the current draft! Grounded in UHC, the Principles bring a human rights and equity lens to digital health, and are oriented toward supporting sustainable and resilient public health systems. They seek to align stakeholders around core tenets of data governance, to guide behaviours, actions and policies, creating an environment where all people and communities can share, use, and benefit from health data.
>
> We are now inviting feedback through an open public consultation, which will allow the Principles to be further refined, supported, and endorsed by an even wider audience. We encourage partners to share information about the consultation with their networks and to carry out their own regional, national or local consultations to gather further insights from diverse stakeholder groups. Please share your feedback through the online survey <https://iirfvzos27c.typeform.com/HDGP-Survey> on the Public Consultation page, <http://bit.ly/HDGInput> which also includes further information and resources to support local consultations.
>
> AMPLIFY THE CONSULTATION:
>
> Please find a social media toolkit <https://docs.google.com/document/d/1T0WiE_qYI-iHQXxcMD2Hh8vZQT5XRzJbFCZ1ISAkulE/edit?usp=sharing> to amplify this public consultation to ensure we get as diverse a set of inputs as possible! The toolkit also contains a poster <https://drive.google.com/file/d/1S61N-p-ZMbHSGj633LZ_qAHeFY-1n-ZB/view?usp=sharing> for you to share to amplify your organisation’s participation in this consultative process, to which you can add your logo and share. You can also click this link <https://ctt.ac/p3DMr> to directly tweet about the consultation.
> We look forward to your feedback and support.
>
> Best wishes,
> Kirsten
>
> --
>
>
>
> <https://twitter.com/Trans4m_Health>
> <https://www.linkedin.com/company/transform-health-coalition>
>
> Kirsten Mathieson (she/her)
> Policy Lead, Transform Health
>
>
>
> +44 (0) 7413863136
>
> kirsten.mathieson at transformhealthcoalition.org <mailto:kirsten.mathieson at transformhealthcoalition.org>
> transformhealthcoalition.org <http://transformhealthcoalition.org/>--
> Digital-health-wg mailing list
> Digital-health-wg at justnetcoalition.org
> https://lists.justnetcoalition.org/listinfo/digital-health-wg
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